Posts tagged ‘education’

Sukar Ala Sukar- A Website Design for Diabetes Education and Support for Saudi Arabian and Middle Eastern Children

Sukar Ala Sukar is a website for 4th and 5th grade Saudi Arabian and Middle Eastern children to learn about diabetes. Nada Farhat, MD, designed this in my fall course, Online Consumer Health, and she and I revised her project to submit to the 2010 DiabetesMine™ Design Challenge, a competition “to encourage creative new tools for improving life with diabetes”, in the hopes that we would get funding to implement and evaluate the site.

Here is our description: We designed a website to meet the education and support needs of children with diabetes, at risk, or with diabetic family members who live in Saudi Arabia and other Middle Eastern countries or whose families are from these countries. Culture and language (English and Arabic) are embedded in the website design which includes separate areas for girls and boys in keeping with societal norms. The website goals are to increase awareness of diabetes and debunk myths children might have, which are carried out though text, video, games, recipes, and activities. Social media further reinforces education and provides peer support. Our goal is to develop and evaluate the effectiveness of the website with Saudi children in the US and in Saudi Arabia.

To me, this project is fascinating in three ways: the impact of culture on effective design; design of a bilingual site when one language is read left-to-right and the other right-to-left; and how health website design for children is different than for adults. Nada’s final paper for the course addresses many of these through her competitive analysis and research. Our initial answers to the culture question are in the entry. For instance, one way to address cultural norms is to separate the site by gender. Another is to use drawings of people since photographs of girls violate cultural norms. We know that bilingual design can be challenging for languages that are more similar than English and Arabic, such as English and Spanish, especially when one language uses more characters than the other to express the same thing. We also know the importance of localization. And for children’s design we want to be consistent with best practices yet be fresh.

We welcome your feedback.

May 6, 2010 at 8:30 am 1 comment

Online Consumer Health in Jordan: An Interview with Dana Mahadeen

I met Dana Mahadeen, an English Language Instructor at Balqaa Applied University in Salt, Jordan with a background in e-learning. We ended up chatting, not about e-learning, but about how people in Jordan use the Internet for health information. She told me that not all Jordanians use the Internet. Internet use is 18.2% of Jordanians as of March 2008 and 24.5% as of August 2009 according to a different source. I could find no data about use of the Internet for health. Dana told me about health Web sites in Jordan and her own experiences.

While there are health Web sites in Jordan, most are government-operated although there are some private sites. Some of the English language ones Dana knows are http://www.ncd.org.jo/index.php?option=com_frontpage&Itemid=1, http://www.jfda.jo/en/default/http://www.khcc.jo/, and http://www.moh.gov.jo/MOH/En/home.php. She said that there are other sites in Arabic, such as  http://www.6abib.com/, but questioned how accurate their information is. One of the Arabic ones she uses is http://www.sehha.com/. Mostly she relies on American sites like the Mayo Clinic. Dana said that she knew about the Arabic sites because she has a friend suffering from diabetes and cancer. She tries to keep up with the news about these diseases, to understand the conditions better, and to help her friend at the same time. She went on to say that she has used these sites for herself during her pregnancy and when her children are ill.

I asked Dana why she relies on Mayo Clinic’s website instead of the Jordanian ones. She responded, “It is very user-friendly and I guess I just like the site. I have also used WebMD.” I asked if she had heard of anyone writing a blog about their illness, to which Dana responded, “I can’t say I have, but I have heard of people writing about their weight loss.” She went on to say that obesity is a problem there, not to the extent of the problem in the US. They “are seeing more 10+ year old children getting heavier and heavier and I guess we are headed the way of the US. Don’t get me wrong, most Jordanian adults are a bit on the chubby side but not obese. It is a matter of food choices: Jordanian food is naturally rich and, well, fast food is quite popular.”

I asked if heart disease was common as a result of the rich food and Dana responded, “Strange that you should ask. My husband is a Cardiac Surgeon and he is very busy” (40% of deaths in Jordan are caused by cardiovascular diseases, according to Health Minister Nayef Fayez.) To my final question about her own health seeking behavior with a husband who is a doctor, Dana said, “I am always asking my husband questions and I am always looking online. I like to know as much as I can. The Internet is a great tool.”

February 16, 2010 at 9:38 am 4 comments

Health Stories: Triggers for Seeking Health Information Online

When you design a health Web site, the most important questions to ask are how and why someone will come to your site. To help my Online Consumer Health students answer these questions for the sites they design, they create personas and then develop scenarios that start with the persona’s trigger for going online and continue with the persona’s ongoing education and support needs.

Triggers can be related to the calendar, the news, an existing health problem, a concern about a potential health issue, or a new diagnosis or prescription. Triggers can occur because of the time of year: searches for “diet” spike on the first week of each new year and crash a week later. Bill Tancer reported on the frequency of health searches related to a diagnosis of a famous person in the news. The most common trigger is the need to learn more about one’s own or a loved one’s health issue. Susannah Fox said, “A medical crisis flips a switch in people.” With 52% of online health inquiries on behalf of someone else, a loved one’s medical crisis is often the trigger that leads to health searches.

Jill D. is a researcher from New Hampshire whose mother was diagnosed with a gastrointestinal tract tumor. Shocked and worried when she heard this, Jill wanted to immediately learn more. She needed to understand what the diagnosis meant for herself and to help her mother understand it; she also needed to help her mother evaluate treatment options. Jill doesn’t live near her mother so couldn’t go with her mother on her next doctor’s appointment. She would have felt comfortable asking her own doctor questions, but didn’t have an appointment otherwise scheduled. So she went online.

In June 2006, my (then) 74-year-old Mom was told that she had a gastrointestinal tract tumor that was probably cancerous.  As soon as I heard, I wanted to find out what treatment options would likely be offered to my Mom as well as the statistical likelihood of survival.

I looked online for information because I’m not in my doctor’s office often enough to be able to ask my own physician, “Say, what do you know about tumors of the GI tract?”  Also, I wanted to browse through written information at my own pace rather than trying to listen closely to a quick data dump.

I looked online over the course of several evenings.  I know that the trustworthiness of information on any given website is highly dependent on the source of the information, so I concentrated on sites provided by highly reputable medical establishments such as the Mayo Clinic and the US National Institutes of Health.

By far the most useful information for my purposes was available at the National Cancer Institute.  The reason I found it so helpful is because I was able to read the same article in two versions, one intended for patients and the other for medical providers.  I am not a medical provider but I am used to reading dense, scientific journal articles.  Thus I carefully went through a page entitled, “Gastrointestinal Carcinoid Tumors Treatment“.

I learned that these tumors tend to grow very slowly and, if the tumor is localized, the 5-year survival rate is 70 – 90%.  My Mom was wondering if she would be subjected to radiation treatment but this article indicated that radiation is rarely helpful for these types of tumors so I told her that her oncologist would probably not prescribe radiation.  Further, I found out that tumors smaller than 1 cm rarely spread to other areas (metastasize) but that tumors greater than 2 cm frequently metastasize; this told me that my Mom’s 1.6 cm tumor could go either way.

None of the information in the preceding paragraph was available on the page intended for patients, so I was grateful for the chance to read the pages intended for health professionals.  I had to look up a few words, such as “telangeictasia” (the formal term for spider veins, one of the potential signs of GI carcinoid tumors).  Despite my incomplete medical vocabulary, I felt reasonably confident that I understood the article and wouldn’t misrepresent the information when relaying it to my Mom.

This story has a happy ending because my Mom underwent surgery to successfully remove the tumor and—even better—the tumor was not at all cancerous.  Six weeks after the operation my Mom was feeling healthier than she’d felt in years and went off on a long car trip.

January 31, 2010 at 7:36 am Leave a comment

Empathy Without Communication Is Mind Reading

Pam Ressler, RN, BSN, HN-BC, and I discussed how healthcare professionals, family, and friends use empathy vs. sympathy to respond to someone who is ill when I told her about my blog post. Pam had insights based on both professional and personal experiences. She told me about Empathy vs. Emotional Reasoning in Nursing, in Advance for Nurses, which Pam posted a blog entry about. The article defines empathy and emotional reasoning as:

Empathy is defined as the ability to understand another person’s circumstances, point of view, thoughts and feelings. When experiencing empathy, one should be able to understand someone else’s internal experiences.

Emotional reasoning is defined as ‘a cognitive error whereby a person who is nervous or anxious resorts to emotional reactions to determine a course of action.’

The article advises “empathy without communication is mind reading. Listen to patients; provide education, but don’t give advice.”

Pam also mentioned a study about doctors and empathic communication that “sheds light on the types of situations and remarks that physicians should recognize as opportunities to express understanding and support… empathic responses can be brief and do not make consultations longer.”

July 16, 2009 at 10:10 pm Leave a comment

What Your Patients Are Doing Online and Why You Should Engage Them as Partners in Care

I wrote the cover story of Tufts Medicine, Winter 2009, with Dr. Janey Pratt, a surgeon at Mass. General Hospital. The article looks at patient use of the Internet from the physician perspective. The article concludes:

Online resources can help your patients become better educated about medical topics, more confident and comfortable with you and more compliant with treatment. As Anthony Schlaff, director of the M.P.H. program at [Tufts University School of Medicine], notes, “At its best, the Internet is one more tool in the partnership between a physician and patient.” [Bruce] Auerbach, the Massachusetts Medical Society president, couldn’t agree more. “Given that patients are going online,” he says, “the best thing to do is engage them as partners in care.”

The full article can be read at Dr. Google: Your Patients, the Internet, and You.

February 26, 2009 at 7:30 am 2 comments

Talent, Devotion, and Compensation: Attracting and Retaining Teachers

Sometimes a juxtaposition is more powerful than a mashup. This morning I was at a public high school and later at a private school. While I was at each for different reasons, I was struck by the talent and devotion of the people at both schools. While I don’t know their salaries, compensation to attract and retain teachers and education support professionals is lower in the US than in other countries and lower than comparable professions. Teaching for many, myself included, is a labor of love and a chance to use one’s skills and knowledge to help others. Because of this juxtaposition I find myself wondering what triggers this devotion in people and what causes them to flourish in their profession, albeit in the very different environments I was in today. (The mental mashup here, by the way, was trying to understand the impact of salary after reading a press release about the Economic Policy Institute’s new study.)

Online teachers and adjunct faculty are typically compensated less, and have less prestige, than other teachers. While online teachers may have fewer advising or administrative responsibilities, they work very hard, sometimes harder, than teachers in the classroom because they have to master technologies and be available more hours. I wonder not only what triggers devotion in such teachers but what causes it to whither and even dissipate – and what role compensation plays in this.

April 2, 2008 at 11:27 pm 8 comments

Ten Reasons Why Podcasts Are Inferior to Text

Ten reasons podcasts don’t work for education are:

  1. It is faster to read than to listen to text.
  2. It is difficult to skim a podcast (fast-forward can sometimes be used) while most people skim text and carefully read the parts that interest them.
  3. It is easier and quicker to reread text than to replay part of a podcast.
  4. Interesting passages of text can be highlighted or, if online, copied into notes.
  5. Text can be illustrated.
  6. Most people, when driving, working out, etc., do not have the concentration to stay focused on an educational podcast.
  7. When a podcast is of high quality and slickly produced, it seems like entertainment, especially when it starts with music.
  8. When a podcast is of poor quality, the background noise or pauses and speech fillers are annoying to listen to.
  9. It is easier to get into a flow state when reading text because you are less likely to be multitasking.
  10. Deeper learning, as Don Norman says, “takes time and thought”, and it is harder to have deep thoughts when listening passively or when multitasking.

I developed this list after talking to some of Jared Spool’s students, who sent me an e-learning scenario centered on the use of podcasting. While writing this, I listened to a podcast that Jared made, just to make sure that my list was accurate. Part way through, my son called and I dropped off his cleats and then stopped at the track and ran because it is a sunny day and I had been sitting too long. When I got back, the podcast was still playing. Voice can convey nuances that text does not, and Jared is an entertaining speaker, but I prefer text and am unlikely to ever make podcasts for my students.

March 26, 2008 at 12:17 am 12 comments

Persuade Me I Need a Degree: How Unaccredited Online Degree Programs Advertise

The funniest emails caught in my spam filter are the ones that offer me degrees in various enticing ways. Since I am on a “top 10” kick this week, my favorites in my last perusal are the following charmingly ungrammatical ones (#2 reminds me of Porgy and Bess: “Is you is or is you ain’t my baby?”) or the ones that cause doubt (such as #1: can a degree ever expire?):

  1. Expired academic qualification
  2. Is your skills about to expired?
  3. Without books and education process call now
  4. MBA the hottest most sought after degree
  5. Receive PhD that you deserve from an Established Prestigious Institution
  6. Receive MBA very fast
  7. Nominated for a Ph.d
  8. Celebrate your life-long achievements
  9. Start earning the salary you deserve by obtaining the approopriate University Degree
  10. Your Degree shipped by Fed-Ex

In Degrees by Mail: Look What You Can Buy for only $499, I wrote about reading these online degree offers “more carefully than other unsolicited emails to find out how much the degree costs, how long it takes to ‘earn’ it, and what the plausible-sounding name of the institution is”. Now I just read the subject lines. But I still worry that these ads make it harder for the high quality online programs to move away from the déclassé correspondence schools that used to be so common. The biggest issues to me are how students find the high quality programs while avoiding the ones advertised above, and how employers know which online degrees are legitimate and from reputable institutions.

March 12, 2008 at 11:32 pm 10 comments

Ten Things You Can Do in Ten Minutes To Be a More Successful e-learning Professional

You need a break and, instead of heading to the coffee pot, what can you do in 10 minutes that will refresh and energize you and increase your job satisfaction and career success?

  1. Find an e-learning conference to go to and send an email to your manager giving 10 reasons why this will help you perform better. If travel is a problem, find a local seminar to go to.
  2. Find an e-learning conference to submit to. It is much better to go to a conference as a speaker and the process of figuring out what you want to talk about and writing an abstract will be a valuable reflection process.
  3. Write a short description of what you learned at the last conference or seminar you went to or the last article or book you read and circulate it to your colleagues. They will appreciate it and it will reinforce what you learned. It might also help your chances of getting funding for your next conference (see 1).
  4. Do a search on “e-learning”, “instructional design”, “online degrees”, or another topic related to your job and see what people find. Refine your search and try again. Maybe you’ll find something you want to look at, maybe not. If not, use the rest of your ten minutes and search on something totally different, like “swing dancing”, and see if you like the results better.
  5. Write a note your manager with 10 reasons why you deserve a 10% salary increase. Don’t send it unless you came up with the reasons quickly. If you struggled with the list, rewrite it as the 10 things you need to do to deserve a 10% salary increase. Then act upon it.
  6. Take an online course – or at least part of one- and think about how it is designed rather than the content. What are 10 things you would do to improve it? (What would colleagues say if it was your class they were going through?)
  7. Read 10 current e-learning job descriptions and see how many you are qualified for. Write down 10 ideas for your own professional development just in case you ever want to go job hunting.
  8. Email the e-learning expert you most admire and ask him or her to schedule a 10 minute phone call with you to discuss your three most important questions about e-learning. Write up what you learn (when you have the call) and circulate it to your colleagues (see 3). Also, make sure you introduce yourself to that person at your next conference (see 1).
  9. Do a search on “learning technology trends” or “Web 2.0” and identify at least one new technology you know little about that has the potential to improve what you do. Read one or two articles about it.
  10. Ask a colleague the most exciting e-learning idea he or she has had or read about recently and discuss it why it is exciting. You can do this by phone or email, but over coffee is best. See, you get to go to the coffee pot after all!

Finally, think of your own idea for a 10 minute activity that can renew and improve your e-learning practice and post it as a comment to this article so others can benefit.

Thanks to Mark Notess for suggestions 7-9 and to CIO Magazine for inspiring the idea.

March 10, 2008 at 8:37 pm 27 comments


Lisa Gualtieri, PhD, ScM

Lisa GualtieriLisa Gualtieri is Assistant Professor at Tufts University School of Medicine in the Department of Public Health and Community Medicine. She is Director of the Certificate Program in Digital Health Communication. Lisa teaches Designing Health Campaigns using Social Media, Social Media and Health, Mobile Health Design, and Digital Strategies for Health Communication. Contact Lisa: lisa.gualtieri@tufts.edu

@lisagualtieri


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